“Your contributions not only make a difference for the future, but help us celebrate along the way”

-Hayden Roller, PURA Syndrome Advocate

DONATE

How You Can Support

By making a donation today you play a part in Hayden’s community and the evolution of treatment for PURA Syndrome. Your donations help support:

  • Community-driven fundraising events for connection amongst those affected by disability 

  • Organizations in the PURA community dedicated to finding treatments for PURA Syndrome

As Hayden's family, we are encouraging everyone we know to play a role through our community-driven fundraising efforts. We thank you for your trust, support, and love you show us.

Your friend,

McKenzie Roller
Mother of Hayden + Founder of Pursuit for PURA

Frequently Asked Questions

  • Yes. Our EIN is 39-4882762.

  • As a small nonprofit your donations will directly fund our events, bringing our community together.

    We encourage everyone we know to make contributions impacting our community-driven fundraising efforts and will share our impact after each event and how our contributions are distributed. We thank you for your trust, support, and love you show us.

    Donate today and help cultivate our inclusive community events!

  • We would LOVE your support. Please reach out to us to share how we can partner with you by emailing hello@pursuitforpura.org

  • Yes. We happily accept volunteers and all their ideas to help us connect with our community. If you would like to share with us how you can contribute to our organization or simply want to learn more about ways to get involved, don’t hesitate to reach out to hello@pursuitforpura.org