“Your contributions not only make a difference, but help us celebrate along the way”

-Hayden Roller, PURA Syndrome Advocate

Pursuit for PURA depends on your support

How You Can Help

Support our mission by making a donation today and becoming part of our inclusive community and the evolution of treatment for PURA Syndrome.

  • We fund projects in our community that create spaces for all abilities, ensuring those impacted by disabilities know they belong 

  • We donate to organizations supporting research and treatment development for PURA Syndrome. Striving towards a future where a person diagnosed with PURA Syndrome can be given a supportive treatment plan, and ultimately, a cure

We aspire to make an integral difference in people’s lives who are faced with challenges from disability, removing barriers and building accessible pathways forward.

As Hayden's family, we are encouraging everyone we know to make an impact through our community-driven fundraising efforts. We thank you for your trust, support, and love you show us.

Your friend,

McKenzie Roller
Mother of Hayden + Founder of Pursuit for PURA

Frequently Asked Questions

  • Yes. Our EIN is 39-4882762.

  • As a small nonprofit your donations will directly fund our events, bringing our community together.

    We encourage everyone we know to make contributions impacting our community-driven fundraising efforts and will share our impact after each event and how our contributions are distributed. We thank you for your trust, support, and love you show us.

    Donate today and help cultivate our inclusive community events!

  • We would LOVE your support. Please reach out to us to share how we can partner with you by emailing hello@pursuitforpura.org

  • Yes. We happily accept volunteers and all their ideas to help us connect with our community. If you would like to share with us how you can contribute to our organization or simply want to learn more about ways to get involved, don’t hesitate to reach out to hello@pursuitforpura.org