4th of July Block Party with Purpose

Fundraiser for PURA Syndrome + Hayden's Birthday Edition

We invite you to join us on July 4th for a Block Party with Purpose 🇺🇸

Join us (or simply donate from afar) at our neighborhood block party celebrating Hayden's 2nd birthday and helping us fundraise for his rare genetic condition, PURA Syndrome. 

Attendance is free for all!

Enjoy a classic Zenner's hot dog and a refreshing pFriem beer, non-alcoholic beverages, grab n' go snacks, music, and family fun activities.

In honor of our son Hayden Roller who was diagnoses with PURA Syndrome, we are not asking for gifts, but invite you to support by donating to bring awareness and funding for this ultra rare disease on July 4th, Hayden's actual birthday! Your donation will help fund PURA Syndrome awareness and research and strengthen our community of family, friends, and neighbors who refuse to let this disability remain invisible in our community. ❤️

We hope to see you in person and also appreciate your support from afar!

McKenzie Roller
Mother of Hayden + Founder of Pursuit for PURA